The Glimmer of Hope Golf tournament was founded in 2019 and inspired by our son, Alexander Lesti, who at that time was only 3 years old and suffering dozens of seizures every day. Our family found much comfort from the knowledge and support that we received from Epilepsy York Region and wanted to give back in any way we could. That is when we, and a wonderful committee of family and friends, decided to establish The Glimmer of Hope Golf Tournament, benefitting Epilepsy York Region.
The first tournament was a huge success and raised $55,000. We were so thrilled when Epilepsy York Region decided to use the funds to launch the Glimmer of Hope Summer Camp for kids living with epilepsy. Unfortunately, the summer camp was postponed due to COVID 19, but will launch when it is safe again to do so.
As a group, we are passionate about this cause, as epilepsy affects so many people and families. In fact, approximately 1 in 100 Canadians is living with epilepsy and the number continues to grow. This is why agencies like Epilepsy York Region are so important. They continuously raise awareness and provide support to those who really need it. Our family and The Glimmer of Hope group of individuals is dedicated to helping with this cause and continuing our efforts to help those living with this debilitating condition.
As an update, our son Alex continues to struggle every day with his seizures but continues bravely on in his journey to be an inspiration to everyone he meets. Despite the many challenges he has faced, Alex just recently started junior kindergarten and is thoroughly enjoying his days with the other kids. We are so proud of how far he has come! Alex, and so many people like him, shines so much light on the world and continues to be the inspiration for the Glimmer of Hope Golf Tournament.